Her mother Jenny said: "I'd say in Tilly's life at least about 10 times I've honestly thought that she's gone, she's died, with the seizures and going on to ITU and them all saying that we can't stop it and the panic."
Photograph: Julian Chokkattu
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NixOS was an excellent replacement for a while, but I ran into several problems without having the necessary skills to solve them. I migrated to Fedora Silverblue, another immutable distribution in which I have more confidence. I found the comfort of a classic Linux installation while benefiting from the advantages of an immutable system.